Yeah, hope you are feeling better. I get that fight.Hope you're feeling better Peen.
2nd week of the school holidays and we're away for the week . Cool place we came to in October - it's basically 3 shipping containers knocked together to make a little flat. Hot tub out the back. beautiful views, quiet site etc... Took Lola a lovely walk in the forrest yesterday so planning more of the same between now and Sunday. Unfortunately it's pissing down today so a lazy day reading and watching game shows.
Got lots done in the garden last week and painted the garage door which was badly needing it too so even though this is a chilled week, I feel like I've been productive. Took me almost 2 months last year to get the garden looking OK-ish given the state it was in when we bought the house so I'm happy where we're at.
shit man, I am pissed off for you!! Mojo and love sent your way as well.Mojo sent. I hope your biopsy has better results than my non-transperineal one did.
I haven't checked in here in ages. I guess the above is the universe telling me to do so.
Anyway, I had a biopsy and had cancer (again-- last time was like a dozen years ago). It had been monitored for a long time and despite meds the PSA kept creeping up.
So on February 27 I had it cut out. Robot-assisted surgery, so no giant scars. But lots of little ones. Seven hours on the table, one scar for each hour, by coincidence.
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Physically, about as expected at this point.
Which isn't necessarily a good thing. The not dying of cancer bit is just swell. But highly negative side effects (which I'd just as soon not share) can last to a year or more before it's even known if they've resolved.
And then, they could be permanent. Which means more meds, treatments, surgery, etc., to treat the side effects.
I fucking hate that. Sick to motherfucking death hearing about potentially permanent damage being whitewashed as just a "new normal." It ain't fucking normal goddamn it. I know I should be happy I'm not dead. I'm mainly fucking angry. But throw in frustrated, depressed, and self-loathing for funsies. Going to physical/occupational therapy weekly because I have no fucking choice. On the psych side, to me it's a fucking nightmare. And then I see double amputees in the waiting room and hate myself for being a whiney bitch.
Thank god I have a great wife, and the distraction of a couple bands to play in, and am still working.
Because I'm not handling this all that fucking well, tbh.
Oh, and in other news, also still dealing with the after-effects of the radiation from the first cancer. What's probably a "cholesteatoma" in my left ear (the "bad" side of my head that got the most radiation), a rare non-cancerous tumor that effects hearing. May not have anything to do with the radiation, I don't think they understand the causes of them, generally. Sfaik only treatment is surgery. Teeth are falling apart from the radiation, my "oral medicinist" won't even let me get them cleaned for fear the person working on me could fuck shit up even more. I believe the applicable medical term is "benign neglect" (yeah, that's an actual thing). Although I do a whole routine every night (brushing, flossing, 2 different mouthwashes (one a prescription-only), more brushing, flouride "trays" worn thereafter).
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Oh and apparently one rare condition (the ear thing) on the left side wasn't enough, the last oral/head CT ordered by the oral medicinist disclosed something on the right side, which they suspect is a rare condition called (I am not making this up) "silent sinus syndrome" where the orbit around your eye sort of disintegrates and your eye drops accordingly, with accompanying headaches and other fun shit. Sfaik, only treatment, more fucking surgery:
Silent Sinus Syndrome
But hey, I have a great t-shirt collection. So there's that.
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Mojo, @Tig !I thought about deleting this entry because I don't want to bring anyone down, but the writing is therapeutic. I'm usually the guy who makes people laugh, not the Debbie-downer.
I just passed 9 years since I was laid off and not working. This is my mental foundation, and a not very positive one at that. My cognitive abilities and short/long term memory are slowly dissolving. I watch it advancing with dread, knowing that I'll never be able to earn an income again. That increases the guilt. I'm managing to usually keep my psychological head above water, but I miss the mostly dry days of better mental health. Throw in the creep of fascism in the nation, and the toxic mix is difficult to navigate around at times. Exercise and bike riding have always been my great healing mechanism, and although I've lost 75% of my old endurance, I still get out for an hour ride about twice a week.
I know that if cancer rears its ugly head, I won't fight it unless it's early stage. I hate the mentally weakened state I find myself trapped in. I was so damned strong most of my adult life. I hardly recognize this weakness. Not to worry, as there's still a vein of strong stubbornness, deep down that doesn't allow me to fully give up. Hopefully, I will find a purpose in life beyond just managing and loving our rescue dogs and cats.
Hey, have you considered at all getting an e-bike? Just for the assist, and to get you out more? I bet it would reap rewards in terms of mental health, and from what I can tell, trying them out, it is good for sustained moderate cardio too. And I can see it getting me back into longer rides and it sure gives the speed feeling back. And yeah, it is an expense, but if you were able to score a deal on Upway and make it work, it might be worth it. I got one for Mollie and I to share, so she can ride some double track mountain and low exposure single, seeing as she has never really ridden a bike besides around town/paved bike path stuff, and the Giant Trance E I found is very fun and immediately gave me a big dose of fun factor when I tried it. Just a thought that I hope is ok to share with love.I thought about deleting this entry because I don't want to bring anyone down, but the writing is therapeutic. I'm usually the guy who makes people laugh, not the Debbie-downer.
I just passed 9 years since I was laid off and not working. This is my mental foundation, and a not very positive one at that. My cognitive abilities and short/long term memory are slowly dissolving. I watch it advancing with dread, knowing that I'll never be able to earn an income again. That increases the guilt. I'm managing to usually keep my psychological head above water, but I miss the mostly dry days of better mental health. Throw in the creep of fascism in the nation, and the toxic mix is difficult to navigate around at times. Exercise and bike riding have always been my great healing mechanism, and although I've lost 75% of my old endurance, I still get out for an hour ride about twice a week.
I know that if cancer rears its ugly head, I won't fight it unless it's early stage. I hate the mentally weakened state I find myself trapped in. I was so damned strong most of my adult life. I hardly recognize this weakness. Not to worry, as there's still a vein of strong stubbornness, deep down that doesn't allow me to fully give up. Hopefully, I will find a purpose in life beyond just managing and loving our rescue dogs and cats.
Hey, have you considered at all getting an e-bike? Just for the assist, and to get you out more? I bet it would reap rewards in terms of mental health, and from what I can tell, trying them out, it is good for sustained moderate cardio too. And I can see it getting me back into longer rides and it sure gives the speed feeling back. And yeah, it is an expense, but if you were able to score a deal on Upway and make it work, it might be worth it. I got one for Mollie and I to share, so she can ride some double track mountain and low exposure single, seeing as she has never really ridden a bike besides around town/paved bike path stuff, and the Giant Trance E I found is very fun and immediately gave me a big dose of fun factor when I tried it. Just a thought that I hope is ok to share with love.
Oh, right. I forgot about that. Sorry, @Tig , you do you! But I was that way once too, and saw the benefit, as I watched my neighbor pararlympian Muffy Davis’s Dad continue to mountain bike around his Fisher Creek cabin into his 70’s despite an enlarged heart and other issues. He traded that one in for a three wheeler when his balance blew. And it brought a lot of joy into his life before he finally passed. That all changed my mind.You must have missed Tig's prior diatribes on e-bikes and stating he'd give up riding before ever throwing a leg over an e-bike saddle.
Anyway, Mojo to y'all. I'm just trying to keep on keeping on.
Edit: and as a reflection on my state of being, I tried to talk myself into "needing" a new guitar but failed miserably. I have the spare cash but I just can't rationalize the purchase to myself....so, I bought more pics and strings (really, I did).
I'm not anti-Ebike, but anything that would be useful is way out of my price range. The ol' lack of income is probably my greatest challenge, regardless of what's going on.Oh, right. I forgot about that. Sorry, @Tig , you do you! But I was that way once too, and saw the benefit, as I watched my neighbor pararlympian Muffy Davis’s Dad continue to mountain bike around his Fisher Creek cabin into his 70’s despite an enlarged heart and other issues. He traded that one in for a three wheeler when his balance blew. And it brought a lot of joy into his life before he finally passed. That all changed my mind.
I'm finally at an age and position where I can pretty much spend whatever I like, but ingrained habits won't let me enjoy that, and I'm still cheap as hell...I'm not anti-Ebike, but anything that would be useful is way out of my price range. The ol' lack of income is probably my greatest challenge, regardless of what's going on.
When I put upway.com into my browser, I get a connection is not private warning...Upway.com has good deals for demos and overstocks, but yeah, it still costs.
When I put upway.com into my browser, I get a connection is not private warning...